Beandri Booysen was a young woman who captivated the hearts of millions worldwide. As a South African TikTok star, she used her platform to inspire others with her positivity, strength, and resilience despite living with Progeria, a rare genetic condition that causes accelerated aging. Tragically, she passed away at the age of 19, but her legacy continues to impact people around the globe. In this post, we’ll dive into Beandri Booysen’s life story, including her age, height, weight, net worth, and more. We’ll also take a closer look at the rare condition she lived with and how she made a difference in the world.
Beandri Booysen Quick Facts
| Category | Details |
| Full Name | Beandri Booysen |
| Date of Birth | November 20, 2005 |
| Age at the time of passing | 19 years (Passed away December 18, 2024) |
| Place of Birth | Pretoria, South Africa |
| Nationality | South African |
| Ethnicity | African |
| Known For | TikTok star, Progeria awareness advocate |
| Social Media Platform | TikTok (Over 278,000 followers) |
| Height | Approximately 4’3″ (130 cm) |
| Weight | 12 kg (around 26 lbs) |
| Health Condition | Hutchinson-Gilford Progeria Syndrome (Progeria), a rare genetic disorder that causes rapid aging |
| Family | Parents: Bea Booysen (Mother), Pieter Booysen (Father); Siblings: Jaco (23), Herman (21), Ruben (14) |
| Cause of Death | Complications from Progeria-related health issues, including heart failure |
| Famous for | Sharing heartwarming and inspirational content on TikTok, promoting Progeria awareness and spreading positivity |
| Net Worth (Estimate) | $50,000 to $100,000 |
| Memorable Quotes | “I have learned to face everything that comes into my life and I credit my family for supporting me through it all.” |
| Famous Friends | Ontlametse Phalatse (Fellow Progeria sufferer from South Africa) |
| Legacy | Advocate for Progeria awareness, symbol of strength, positivity, and joy despite difficult circumstances |
| Public Influence | Inspired thousands of followers with her TikTok videos, her story resonated deeply with fans, especially in the Progeria and disability communities |
| Last Surgery | Open-heart surgery in October 2024, after which she showed optimism and determination to survive and celebrate Christmas with her family |
Beandri Booysen Biography: A Story of Strength and Inspiration
Early Life and Background
Beandri Booysen was born in Pretoria, South Africa, with Progeria, a condition that affects fewer than 400 children worldwide. Progeria (officially known as Hutchinson-Gilford Progeria Syndrome) causes rapid aging in children. While most children with Progeria only live to their early teens, Beandri defied expectations and lived to the age of 19. Her incredible journey began when she was diagnosed with this rare genetic disorder early in her life, marking the start of her challenging yet inspiring battle.
Beandri’s family was at her side throughout her life, supporting her emotionally and physically as she faced the difficulties associated with her condition. Her parents, particularly her mother, Bea Booysen, were vocal about the challenges and triumphs their daughter faced, offering a glimpse into the strength and determination that Beandri carried with her daily.
What Is Progeria?
Progeria is a genetic condition that accelerates the aging process, making children appear much older than they actually are. Those with Progeria face a range of health issues, including:
- Brittle bones: Due to osteopenia and osteoporosis.
- Hair loss: Children with Progeria often experience hair thinning or baldness.
- Cardiovascular problems: Heart disease, strokes, and other heart-related conditions are common.
- Short stature: Individuals with Progeria tend to be much shorter than their peers.
Despite all these challenges, Beandri lived well beyond the typical life expectancy of someone with Progeria, which is around 14 years.
Beandri Booysen’s Rise to Fame on TikTok
Starting Her Social Media Journey
Beandri first gained attention on social media, particularly on TikTok, where she began sharing videos showcasing her unique perspective on life. Her content resonated with millions of people worldwide because of her infectious personality and unwavering positivity. In her videos, Beandri would talk about her daily struggles, offer motivational words, and share humorous moments from her life.
Gaining a Massive Following
Beandri’s TikTok following quickly grew to over 278,000 followers, thanks to her authentic and heartfelt content. Her fans were drawn to her ability to make light of her circumstances while never letting her condition define her. Whether she was cracking jokes, sharing moments with her family, or simply smiling through the ups and downs of life, Beandri created an emotional connection with her audience.
Beandri’s Influence: Raising Awareness for Progeria
As one of the most well-known figures living with Progeria, Beandri used her platform to raise awareness for the disease. Her videos often included educational content about Progeria and its impact, not only on children but on families as well. She became an advocate for those with rare diseases, using her fame to spread understanding and encourage kindness and inclusivity for people with disabilities.
Quote from Beandri’s Mother Bea Booysen:
“Despite the challenges she faced, Beandri radiated hope and joy, inspiring thousands with her unique spirit.”
Beandri Booysen Age, Height, and Weight: Living with Progeria
Beandri Booysen’s Age: A Journey of 19 Years
At the time of her passing in December 2024, Beandri Booysen was 19 years old, a milestone that is quite rare for someone with Progeria. Children with this genetic disorder typically only survive into their early teens, but Beandri’s life story was one of hope, resilience, and defiance of medical odds. Her family celebrated her 19th birthday just weeks before her passing, reflecting on her strength and the inspiration she provided to others.
Despite the shortened life expectancy associated with Progeria, Beandri proved that with the right support, a loving family, and a determined attitude, life could still be full of joy, inspiration, and meaning.
Beandri Booysen Height: A Short Stature
Due to the effects of Progeria, Beandri’s height was considerably shorter than her peers. Progeria typically limits growth, and children with the condition are often significantly smaller than those without it. While the exact figure is not publicly available, it is safe to assume that Beandri’s height was around 4 feet tall a common characteristic of individuals with Progeria.
Beandri Booysen Weight: Affected by Her Condition
Due to the health challenges associated with Progeria, Beandri also had a much lower weight than average. At the time of her passing, Beandri weighed only about 12 kg (approximately 26 pounds). This weight was due to complications like osteoporosis, poor bone density, and cardiovascular issues. Her condition made maintaining a healthy weight more difficult, but she continued to share her journey with her followers with grace and positivity.
Beandri Booysen’s Health Journey: Overcoming Challenges with Progeria
Beandri’s health challenges were numerous, but she faced each one with unrelenting optimism. Throughout her life, Beandri struggled with various complications associated with Progeria, including osteoporosis, aortic stenosis, and heart issues. In October 2024, she underwent open-heart surgery to address complications arising from her condition, which had affected her heart and blood flow. Despite the seriousness of the surgery, Beandri’s spirit remained strong. She expressed her desire to celebrate Christmas with her family and continued to inspire her followers with her courage.
Unfortunately, after a recent health scare, where her heart stopped, Beandri passed away. Her mother, Bea Booysen, shared the heartbreaking news on social media, asking for prayers for her daughter’s recovery. Despite the challenges, Beandri’s determination to keep going was unwavering until her last breath.
Beandri Booysen Net Worth: How She Earned From Her Influence
TikTok Earnings and Sponsored Content
Beandri’s online presence was not just about spreading joy and positivity it was also how she made a living. With a substantial TikTok following, Beandri was able to earn money through sponsored content, brand deals, and collaborations. Influencers on TikTok typically earn money through promotions, affiliate marketing, and donations from fans.
While the exact figure for Beandri’s net worth is not publicly disclosed, it is believed that she earned a modest income from her social media fame, estimated to be around $100,000 at the time of her death. This figure includes earnings from her TikTok account, brand sponsorships, and possible collaborations.
Charitable Ventures
In addition to her TikTok work, Beandri was involved in charity work, raising awareness for Progeria and other rare diseases. Although her net worth might not have been astronomical, the impact she made through her advocacy was immeasurable. Her journey was about much more than money it was about raising awareness, changing perceptions, and inspiring others.
Beandri Booysen’s Legacy: What She Left Behind
An Inspiration to Many
Beandri’s legacy continues to live on through the thousands of people she inspired. Her story resonates with people all over the world, especially those facing their own health challenges. Beandri’s unique spirit and ability to find joy in life despite her circumstances made her a symbol of hope for many.
Her TikTok videos were not just entertaining they were powerful tools for education, spreading awareness about Progeria and showing the world what true resilience looks like. Beandri’s influence can still be felt through the countless messages and tributes from her followers and fans.
Raising Awareness for Progeria
Beandri became the last known individual in South Africa living with Progeria. Her presence on TikTok helped raise awareness of the condition, encouraging people to learn more about Progeria and the challenges faced by those living with it. Her journey sparked important conversations about rare diseases and the need for medical research, support, and understanding.
Frequently Asked Questions
Who is Beandri Booysen?
Beandri Booysen was a South African TikTok star known for her inspiring videos. She had Progeria, a rare genetic condition that causes rapid aging, and used social media to spread positivity.
How old was Beandri Booysen when she passed away?
Beandri was 19 years old when she passed away on December 18, 2024. She was born on November 20, 2005.
What was Beandri Booysen’s health condition?
Beandri had Hutchinson-Gilford Progeria Syndrome, a genetic disorder that leads to accelerated aging. She also faced other health issues like osteoporosis and heart complications.
Is Beandri Booysen still alive?
No, Beandri Booysen passed away on December 18, 2024, after battling the effects of Progeria and related health complications.
What made Beandri Booysen famous?
Beandri became famous for her TikTok videos where she shared her journey living with Progeria, inspiring others with her positive attitude and raising awareness about the condition.
How did Beandri Booysen pass away?
Beandri Booysen passed away due to complications arising from her Progeria, including heart failure. She had recently undergone open-heart surgery in October 2024.
How tall was Beandri Booysen?
Beandri Booysen was approximately 4’3″ (130 cm) tall, which is typical for children with Progeria due to the growth limitations caused by the disease.
How much was Beandri Booysen’s net worth?
Beandri Booysen’s net worth was estimated to be between $50,000 and $100,000, primarily from her social media presence and sponsorships.
What was Beandri Booysen’s role in spreading awareness?
Beandri used her platform to educate people about Progeria, showing that people with special needs could lead inspiring lives and encourage a positive outlook despite hardships.
Who were Beandri Booysen’s friends?
Beandri was close friends with Ontlametse Phalatse, another South African girl with Progeria who passed away in 2023. Together, they raised awareness about the condition in South Africa.
Conclusion
Beandri Booysen’s life was a testament to the power of positivity and resilience. Despite living with Progeria, she managed to inspire and touch the hearts of thousands of people around the world. Her TikTok videos, which focused on humor, love, and motivation, will continue to live on, serving as a reminder of her incredible spirit. Through her journey, Beandri showed us that no matter the challenges we face, we can always find joy, love, and inspiration. Her legacy will continue to influence people, raise awareness for Progeria, and remind us all to appreciate life’s precious moments.
Hi! I’m Haarrii, a dedicated content creator with 5 years of experience in creating engaging, strategic, and impactful content. With a passion for storytelling and a focus on research-driven strategies. I have work on diverse projects that connect brands with their audiences effectively.
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